Mary had a sort of jurnal on her piczo website so I (Her sister Hanna) am going to post it here for you to read. But just so you are up to date...
Mary-Kathryn Elaine Donovan and I were born May 28th 1991. Mary was diagnosed with Aplastic Anemia on May 13th of 2006. When Mary's amune system was still low while she was suposed to be in recovery, a lung infection appeard and eventually took over her lungs. The doctors were unable to cure the lung infection. On November 21st 2006, she was taken of life suport to end her pain.
Mary was a very fun girl to be around. She could make you laugh even if you were in the most miserable of mood. Though her life was sort, she made life worth while for me aswell as the people who thought her dear. I am very glad and very honored to have been her womb-mate. <3
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All that read this may not know that just three months ago (May 13th 2006) I was diagnosed with a disease called "Severe Aplastic Anemia". My bone marrow failed because enviromental toxins went into my bone marrow. Then my fighter cells (a.k.a, my immune system) started to attack my marrow thinking that it was forin. Eventually my bone marrow failed (it didn't die, it just failed) and stopped making new blood cells, platlets, and other essential things that i need to live. So now I have to get transfusions like once every two weeks now.
We resently found out that I have a marrow donar, and I will need to go straight to a bone marrow transplant and get chemotherapy. I would also need to live in Toronto for a month for the transplant then at the IWK for three months for chemo. In Toronto I will be in complete Isalation because they will kill all of my marrow and then give me someone elses. I will then live in Halifax for three to four monthes to continue my chemotherapy.
My blood type will probably change, and mabye my alergies too, and i'm finaly (but slowly) getting off my current medication
We resently found out that my mom and I will be going to toronto on the 21st of this month, but before that we're going to halifax on the 18th for a few days then I'll be gone for the next 6 months.
day -4 (4 days to transplant)
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Good news, I'm in toronto rite now and aparently they have a computer I can use. When I got here I was on day -6, day 0 is my transplant and I will be home after day 100.
This place is friken awsome. I get to sleep all I want, even though I feel like crap most of the time, and this place is like a mall on the first floor, I'm on the 8th floor. Mom hates the elevators case you can see rite through the back of them.
day 2 (after transplant)
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In my past week of being in this hospital I have felt like crap. The chemo they gave me from day -6 through day -2 have made me lose my apitite completely. I haven't been eating anything for the past two days, well mabe some crackers and a pop tart, but basicaly thats all. I almost feel like I have no will left to live, I don't feel like doing anything or eating anything. Because of my lack of nutriton, there giving me this TPN stuff (total body nutrition), but yet it doesn't satisfy my hunger. My nurse is giving me some gravol and pain killers from time to time, but all they do is make me sleepy.
I'm now in the Isolation room. Every thing has to be disenfected before coming in. All there is ,is my bed, some chelves with my stuff on it a recliner chair, my iv pump, a monitor, a tv with a dvd/vhs, a comode (and for thoses of u who don't know what a comode is, it's a seat, when u lift up the lid there's a tolet seat with a a bowl underneath it). That's what I use to go to the bathroom. It's not that bad it's just like any other toilet, I'ts just the nuse has to empty it each time so they can now how much water I'm retainting.
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Aplastic anemia is a condition where bone marrow does not produce sufficient new cells to replenish blood cells.
The term 'aplastic' means the marrow suffers from an aplasia that renders it unable to function properly. Anemia is the condition of having reduced hemoglobin or red cell concentration in the blood. Typically, anemia refers to low red blood cell counts, but aplastic anemia patients have lower counts of all three blood cell types: red blood cells, white blood cells, and platelets, termed pancytopenia.
If any one has any questions just ask.
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